If you’d asked me a year ago if I’d ever consider joining a support group, I would have thought you were crazy. All I could imagine was sitting in a circle with other sad people, eating stale cookies and drinking some sort of bland tea. I had seen the movies, and I’ll admit, I was completely turned off to the idea.

However, being diagnosed with a chronic illness was super isolating, and shortly after I got sick, I found myself desperately wanting to connect with other people like me. And, after a little bit of research, I found the Dysautonomia Support Group on Facebook, and I couldn’t be happier.

So, What Did I Learn?

A whole bunch! Here’s a list:

1. Internet groups are valid

Don’t let anyone fool you into thinking that the internet isn’t a valid way to connect with others. Social media support groups are great for meeting people with the same illness(s) as you! Plus, you’ll be able to connect with people from all over the world, which of course, is pretty cool. Just be sure to do your research and join the group that best suits you.

2. Support groups aren’t depressing

We all have our bad days, our flare days, and those days where we just don’t have any spoons, which is why having a support group is so great! Everyone in the group supports one another and rallies behind anyone that might be having a not-so-great day. It’s really quite inspiring and uplifting!

3. You’re not alone

When I was diagnosed with POTS, I was at first super elated to have some answers, however, that elation quickly turned into loneliness as I realized that no one I knew had what I had. But, since joining my support group, I have found hundreds of others with the exact same diagnosis!

4. You’ll learn so much more about your illness

Think you know everything there is to know about your chronic illness? Well think again! Joining a support group has opened my eyes to tons of great recourses, information, and events. I’ve learned so much about my illness since joining my group than I have from any doctor I’ve spoken to.

5. Online groups are super accessible

Many individuals with chronic illness struggle with mobility, fatigue, and pain, making it rather difficult to leave the house. Therefore, belonging to an online community is a great way to connect to others right from the comfort of your own bed. Plus, the internet never closes, so you’ll have 24/7 access to support.

Don’t Be Scared

It’s totally understandable — talking to new people can definitely be scary, but that’s the beauty of the internet! You can participate in your group however you’d like and at a pace that is comfortable for you.