Since I’ve gone public with my health journey, a lot of people have been asking me about my specific illnesses and how they affect me. So, this week, I’ve decided to make a blog post about it!
My hope is that maybe I’ll help steer someone toward a correct diagnosis, which as many of you know, was difficult for me to obtain.
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When I received my diagnosis, I was super elated. I finally had a doctor who listened to me, and I felt like I was on top of the world. However, I did not think about the long-term toll that POTS (Postural Orthostatic Tachycardia Syndrome) would take on my body.
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The first thing I remember about being diagnosed with Dysautonomia was feeling bad for everyone but myself.
Knowing that I’d be unable to do the things that I once enjoyed, or having to find adaptive ways of doing those things, just seemed like too much, and having to ask other people, specifically my husband, to make those adaptions with me felt like a nightmare.
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Chronic illness comes in many shapes and forms. While each have their own characteristics that make them unique, I will be speaking about what I have experienced while living with my wife, a.k.a Chronically Carly.
Read MoreI had planned to publish a St. Patrick’s Day themed blog this week, however, I don’t think many of us will be venturing outside for green beer, parades, and parties this year. So instead, I’ll be writing about how I plan to survive a potential quarantine with a chronic illness because I know just how worrisome it might be.
If you’d asked me a year ago if I’d ever consider joining a support group, I would have thought you were crazy. All I could imagine was sitting in a circle with other sad people, eating stale cookies and drinking some sort of bland tea. I had seen the movies, and I’ll admit, I was completely turned off to the idea.
However, being diagnosed with a chronic illness was super isolating, and shortly after I got sick, I found myself desperately wanting to connect with other people like me. And, after a little bit of research, I found the Dysautonomia Support Group on Facebook, and I couldn’t be happier.
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In February 2019, I came down with just about the worst cold in the world — sniffling, sneezing, coughing, the whole shebang. For two whole weeks, I broke our budget on tissues and Vicks VapoRub until my nose, and my wallet, finally dried up.
Of course, I was elated to wake up one morning with nothing but a lingering cough, ready to take on the world once more. But, what I didn’t know was that this was only the beginning…
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